The KAT6A/KAT6B Patient Registry

Sponsor

KAT6 Foundation
8 Leland Ct, Chevy Chase, MD, 20815
https://kat6.org/

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Registry Contact

The Registry Staff
registry@kat6.org
8 Leland Ct, Chevy Chase, MD, 20815

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Institutional Review Board (IRB)

North Star Review Board
877-673-8439
learningirb.org
info@northstarreviewboard.org

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Social Media

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LinkedIn

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An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at https://learningirb.org.

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Visit the National Organization for Rare Disorders home page at rarediseases.org.